HealthData@EU Central Platform
The HealthData@EU Central Platform is a pivotal digital system being developed by the European Commission to meet the requirements of the upcoming European Health Data Space Regulation. This platform hosts the Dataset Catalogue, which compiles metadata from member states, European institutions, third countries, and research infrastructures. Additionally, the key functionalities include completing and submitting Data Access and Data Request applications for assessment and decision-making by relevant Health Data Access Bodies.
Discover the Platform
HealthData@EU Infrastructure enables creation, updates, and deletion operations on the Dataset Catalogue via a secure machine-to-machine connection between the HealthData@EU Central Platform and Contact Points. These Contact Points include entities from member states, European institutions, third countries, and research infrastructures. The connection leverages the eDelivery AS4 software infrastructure, ensuring a robust and secure system developed and tested by the European Commission in collaboration with the EHDS2 Pilot project.
The solutions for both the HealthData@EU Central Platform and Infrastructure are now available as open-source software as Commission aims to promote transparency and enable wider adoption by stakeholders across Europe. These solutions are available under a license and can be accessed code.europa.eu.
Delivery Timeline
Objective of Release 8
Key features
Dataset Details page aligned with HealthDCAT-AP and optimised for large numbers of variables
- The Dataset Details page of the EU Dataset Catalogue has been redesigned and updated to make HealthDCAT-AP key properties more prominent. Additionally, the new solution allows to display and easily browse through a large number of variables.
- The “Add to Basket” functionality was moved to the top of the page to improve user experience.
- A new subpage has been created to support the future display of a metadata quality indicator assessing dataset descriptions against HealthDCAT-AP requirements.
Health Data Application and assessment process improvements
- Section 1 of the Health Data Application was redesigned to align with the updated Variables display of the Dataset Details page.
- The decision process for Data Access and Data Request applications was updated to align with Policy requirements.
- The HDAB now issues a Draft Data Permit. The applicant can acknowledge the draft, request clarifications or withdraw the relevant dataset from the Data Access Application. If the Applicant does not respond to the decision on time, the system informs the former (the HDAB) about the deadline expiry. The same logic has been applied to the Data Request application decision flow.
- To allow for better searching and referencing as well as consistency, the Data Request Reference number has been introduced for Data Request application decisions, following the same usage as the existing Permit reference number for the Data Access applications.
- Additionally, all attachments in Applications will undergo a security check before being uploaded to the system and translated.
New user role: HDAB User and dedicated services
- A new user role, the Health Data Access Body user (HDAB User) has been introduced, giving authorised users access to the Authorities Workspace page and its restricted services.
- HDAB Users can consult the Enforcement Measures Registry, which contains enforcement measures published by Health Data Access Bodies through the Enforcement Information Exchange Tool in the Authorities Workspace.
New functionality for validating and publishing results from secondary uses
- As mandated by Article 61(4) of the EHDS Regulation, results or outputs of secondary use must be made public within the applicable timeframe. Release 8 introduces functionality supporting this process. Once a Data Permit has been granted, or a positive decision on a Data Request has been issued, the applicant can submit the corresponding results to the associated HDAB for validation before publishing them in the relevant registry on the HealthData@EU Central Platform.
Newsletter service
- Users of the HealthData@EU Central Platform can now subscribe to the newsletter service and receive email notification when newsletter content is published. The service is supported by the Drupal Content Management System (CMS), which is used to manage and publish content on the HealthData@EU Central Platform.
HealthDCAT-AP Technical Specifications changes
- To support the technical representation of the “Variables” metadata element defined under the Article 77 implementing act, dct:title has been introduced as a mandatory property of the csvw:TableGroup class. It provides a title for groups of variables/tables and supports their clear presentation in the EU Dataset Catalogue. This is a technical modelling requirement within HealthDCAT-AP and does not introduce an additional minimum metadata element beyond those defined in the implementing act.
- A new optional property healthdcatap:hdabCoordinator was introduced to represent the coordinating HDAB where relevant.
- The HealthDCAT-AP Technical specifications were updated so that properties are listed alphabetically by name.
- The Technical Standard and Coding System controlled vocabularies were updated.
- A “Type of standard” column was added to the conformsTo controlled vocabulary to support its hierarchical/thesaurus structure.
- The HealthDCAT-AP specifications and controlled vocabularies were migrated to the official EHDS domain data.health.europa.eu.